December 14, 2009 - December 14, 2011
- Hometown: Edmonton, Alberta
- Year of Diagnosis: 2010
- Diagnosis: Undifferentiated Sarcoma
Some facts about my treatment:
I would like to tell you a little about a remarkable little boy: Aidan Charles Earl Barnes
Aidan was born on December 14, 2009 on his own terms arriving quickly at home before we could make it to the hospital. Aidan gained weight quickly and by 5 months old he was 25 pounds. He loved spaghetti, wooden trains, Aidan loved music/danicing. he was often found standing on the couch dancing,
Aidan loved playing lego with his big brother Gage. Aidan was big hockey fan watching it on TV and was the cutest Oilers fan at Rexall when he accompanied us to cheer the Oilers on. He also loved going to the arenas cheering for Gage during his hockey games and for Mckenzie during ringette games.
We noticed a small bump on the back of Aidan’s head when he was about 2 months old; The bump continued to increase in size. His first MRI happened around his first birthday his first surgery on February 22, 2010. some of the tumour could not be removed., samples were sent out for pathology. one month after the surgery we were informed that Aidan had an as yet undetermined type of cancer. The results of another revealed everyone had feared: what had taken 14 months to grow the first time had grown back in a month. Aidan’s cancer was finally classified as Undifferentiated Sarcoma, an extremely rare and aggressive form of cancer. 5 rounds of the most powerful combinations of chemo available: we found out the tumor was shrinking and we thought we were winning. The joy was short lived. We were referred to Boston’s Massachusetts General Hospital for proton radiation which is not available anywhere in Canada. During the first week of tests there, the veteran doctors were shocked as it seemed as though the tumour was starting to grow faster. Aidan received 10 weeks of radiation, nine more rounds of chemo therapy. He was switched from Tylenol to morphine to methadone.
An MRI three weeks after returning from Boston confirmed our worst fear: the tumour had continued to grow and was now invading his brain. Aidan was terminal. There was an option for surgery to extend his life by a few months, but the extension would be spent in the hospital, and there were many. We made the difficult choice to spend what time we had left with Aidan at home. We thought we had about three months however, that was soon changed to only a few weeks. Aidan died December 13. On December 14th (his 2nd birthday) we got to see and hold Aidan one last time.
Through everything Aidan endured, he had a smile, loved life and found happiness in the smallest things. He truly was a happy child who seemed to transcend all the chaos around him.
This of course just brushes the surface of who Aidan was. We wish you could have met him – his smile made strangers smile back. We love you Aidan.