July 2, 1994 – July 9, 2007
- Hometown: Moncton, New Brunswick
- Diagnosis: Alveolar Rhabdomyosarcoma
It is always a pleasure to talk about our son Sean, our hero.
At his birth in Moncton on July 2nd 1994 the paediatrician gave us the news our new born only child had a heart condition. A murmur was detected that was later diagnosed as Sub-aortic stenosis. When Sean was seven he had open heart surgery to rectify his condition, he quickly became a hockey and soccer player again.
Sean enjoyed two years of good health and his personality developed and we were pleased that he became a funny, smart, mature kid with a strong social conscience. When Sean was nine he was struck on the hand and a bump appeared, this bump continued to grow. The bump was later diagnosed as cancer, Alveolar Rhabdomyosarcoma to be exact. Sean was given a tough protocol, surgeries, radiation and a very toxic cocktail of extremely aggressive chemotherapies. He also ran the gamut of scary neutropenia, blood transfusions and needles. Sean hated needles. After 14 months, Sean was cancer free and enjoyed school and activities like other children. One day about a year later, Sean’s mom noticed a bump on Sean’s leg, it was back. Another battle ensued and Sean won it in fine style!
We rushed to Australia and New Zealand and enjoyed life with our 12 year old boy of incredible character. Upon our return to Moncton scans revealed that the cancer was back for a third time, the chances of beating this cancer were nil, we went for quality of life and decided not to treat.
Sean had two bestselling books written about him. In the book Ten Needles, he is quoted with a profound message about happiness, “live everyday like it’s your last day of school, happy and excited for the day….for the moment.”
Sean left us peacefully on July 9th, 2007 and we still miss him and talk about him every single day!